Research Highlights.

Insulin-like growth factor-1 and neurotrophin-3 gene therapy prevents motor decline in an X-linked adrenoleukodystrophy mouse model. In: Annals of Neurology 2009; 66:117–122. (Click here for abstract)

Stem Cells Stop Mouse Shivers Cold, Could Thwart Rare, Neurological Disorders. Findings could trigger new therapies for cerebral palsy, multiple sclerosis and other debilitating diseases, including the subject of the feature film Lorenzo's Oil. By Nikhil Swaminathan in Scientific American, 5 June 2008.

X-linked adrenoleukodystrophy. In: Annales d'endocrinologie (Paris). Dec 2007; vol. 68, issue 6, pp.:403–411. (Click here for abstract)

X-linked adrenoleukodystrophy: the Australasian experience. In: American Journal of Medical Genetics Part A Apr 1998 13;76(5):420–423.  (Click here for abstract)

Keeping up with latest research.

If you are interested in reading the latest research reports, try PubMed – a searchable library database of nearly all medical research published worldwide. PubMed is sponsored by the USA National Library of Medicine and the National Institutes of Health. They have an excellent online tutorial ('Quick Tours') to get you started.

NZORD also has a Rare Disease Information site, which includes list of rare disease websites.